Thursday, January 22, 2009

Blair Update

I wanted to give an update on Blair's progress. She is doing well, praise the Lord! She loves to be talked to, loves her mobile, smiles at her mommy at 5am, snoozes in the car, smacks her pacifier when she sleeps, and really enjoys a bath! There are days that she takes great naps and days she keeps mommy tied up all day. She's so cute that she makes me laugh out loud sometimes.

Here's my foot!

Is this not the most pitiful "I didn't want to get out of the tub" face?

We worked hard to stay on a 3 hour schedule, but since the doctor started adding calories to the breastmilk using preemie formula and she got thrush, she wouldn't take more than 2 to 3 ounces at a time (she was taking 4), which made going 3 hours difficult. Last week I started feeding her anytime she'd take it. My heart told me that she wasn't eating a lot, because she didn't like the formula, but I trusted the doc and gave it a good go (4 weeks) -- until this week. I decided to try a few days without formula in the milk, and she has eaten really well. The combination of changes must have worked. After no gain last week, she gained 8 ounces this week and now weighs 8 pounds 12 ounces. Still tiny but growing out of those newborn clothes!

She is still on oxygen at fluctuating levels. It usually stays between 1/6 and 1/4 liter. This is about the same amount she has been on since she came home, but her blood oxygen saturation stays in the 90s much better now without dipping into the 80s. Her doctor said that growth is the only cure for her lungs, and growth will bring about decreased oxygen requirement. And Blair is growing!

We found out yesterday that Blair has some hearing loss. It seems to be about 30% - 40% loss in both ears, due to problems with the nerve and not the outer ear. The ENT did not know why and said he may not ever know. Her pediatrician said that one of the antibiotics she took the first two weeks of her life could have an effect on hearing, but it's not for certain that's what caused her hearing loss. I will talk to the ENT about it next time we see him. I don't dare look anything up on the internet. Only once did I attempt that, and I learned quickly that it's much less scary to talk to the doctor! The ENT said that he has seen NICU babies' hearing improve. He does not expect Blair's hearing to worsen, but he said that it's possible it can improve. She will have another test in April. Then, we will decide what to do depending on the test results. The most likely scenerio will be hearing aids to try to avoid speech issues and continued monitoring of her hearing to see if it improves.
We are thankful that she can hear and is "talking" to us and her mobile! We will keep praying for God's healing for Blair -- we have seen Him answer many prayers already!

We continue to be thankful for prayers for our baby girl. She is such a joy to have at home, and we look forward to everyone's meeting her at some point in the future!


Jen O'Daniel said...

I love seeing those pictures of Blair! I know the tubby picture has her showing off her foot, but I just can't help seeing her big beautiful eyes! She's gorgeous!

I'm sorry to hear about the hearing loss, but I'm so grateful to learn that it is only partial with the possibility that it could improve.

I'm so proud of you for being so strong and being such a wonderful mother to Blair!

Give that little Blair a hug from me, and tell her to keep on grow, grow, growing!

Anonymous said...

I am glad that she is progressing so nicely. Did they give you any idea when she would get to go off oxygen? She is adorable and is getting so big. I still check the blog religiously and am glad that things are going well!